After repeatedly hearing the same response from specialists, “we don’t know how to help”, I realised there was little to no recognition of this debilitating disease. I began brainstorming ideas with my closest friend in regards to raising awareness both in the medical and public world.
We wanted a platform we could use to not only raise awareness, but to raise funds for the much needed research of this debilitating disease. We wanted a space we could use to support other TN warriors and their families and friends.
Fighting TN has allowed us to connect with so many people and demonstrated how important achieving our mission is. We want to see a world where we aren’t in pain from brushing our teeth or feeling a light breeze.
-Skye